There's a few new things going on this week...
First: Nora's starting to crawl! Here we go...
Second: She still likes every food (except peaches...she'll eat them just makes faces)! Even mango! Yum!
And now the big news:
Nora has been diagnosed with Brachycephaly and right Plagiocephaly. Now, those are just fancy names for basically having a flat and wide head.
Her head looks something like this. This is an example of a child with a mild case of both Brachycephaly & Plagiocephaly.
It is not an extremely severe case, but one severe enough to need correction. The number of cases of Plagiocephaly has recently skyrocketed from 1 in 300 to 1 in 60, since babies have been sleeping on their backs, while the number of cases of SIDS has decreased rapidly. For most children with Plagiocephaly it is corrected with re-positioning their head while laying on their backs. For some, this does not correct the problem. Some children, like Nora, were born with it. Most babies are born with an odd-shaped head but it usually rounds out over the first few months. Nora's head shape is from her position in utero, so it wasn't anything we could control.
Well, now Nora is ready to start her treatment! On Wednesday, we will go back to the doctors (
Cranial Technologies) and Nora will get her DOC band! It is one version of a cranial helmet.
This is what a DOC (Dynamic Orthotic Cranioplasty) band looks like.
We've been for the evaluation and the DSi already. The DSi is where they take a 360 picture of Nora's head to make the band perfect for her head.
This is the DSi machine. Nora sat on the stool.
They put some pantyhose over her head to smash her hair down to get a good picture of just her head shape. This is Nora with her clinician.
They held her up and tried lots of things to get her to sit still and straight!
Now we are in the waiting process. We have to wait 2 weeks for the band to be made and then they'll fit it to her and we'll learn all the ins and outs of it.
This is has been such a learning process! I have never known why some children wear helmets and I'll admit this was not a reason I thought it could be! While Nora's head shape may seem insignificant, it has a great impact on her life later! Since her head isn't perfectly round, that means her skull bones aren't perfectly aligned. By treating this now we are preventing future problems and possible surgeries. Otherwise, she could end up with jaw problems, TMJ, an underbite, sinus problems, etc. It may seem this is just a cosmetic procedure, but it's definitely a proactive one instead! We'd rather Nora look cute in a "new hair accessory" for a few months than need painful surgeries later!
Stay posted for pictures of Nora sylin' in her band...soon!
Note: To find out more information about Nora's condition or treatment, visit www.cranialtech.com